This Little girl is living with heart outside her chest
was born with her heart on the outside of her
chest is now raising money needed for her
daughter's surgery.
Dari Borun was told by doctors that her
daughter wouldn't live long after birth, but
Virsaviya Borun-Goncharova has defied the
odds growing up into a little girl who likes to
draw and dance.
"I like to draw Jesus, ponies and angels," said
Virsaviya Borun told NBC Miami .
"I don't go to the school and I don't go to the
ballet but I want to do it at home," she added.
She suffers from Pantology of Cantrell, a rare
disorder that is present at birth involving the
sternum, diaphragm and pericardium.
In Virsaviya's case, she was born with her heart
and intestines on the outside of her body,
covered by a thin layer of skin.
"Virsaviya is missing part of her chest bones,
part of [her] abdominal muscles, and doesn't
have a diaphragm," says a fundraising
page set up for the family.
"My heart is right here. It's outside of my chest
and I really love my mum, she's always
touching my heart because she likes it," said
Virsaviya.
Born in Russia, Virsaviya was turned down by
'many doctors' until a physician at Boston's
Children's Hospital agreed to treat her.
Video
Via: stuff.co.nz
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